Over 6,500 rare diseases affecting approximately 25 million Americans. seventh annual celebration of the NIH Rare Disease Day aims to raise public awareness of these diseases through a free public event to be held on 28.
The rare disease research community will offer visits various, presentations, posters and February exhibitions highlighting the challenges for people with rare diseases. . Heavy emphasis will be on research and collaborative activities that have brought progress in the diagnosis and treatment
Topics on the agenda include:
- Medical Devices rare diseases
- using advanced imaging techniques for a glimpse of the rare genetic heart disease
- Establishment of an undiagnosed illness Network
the event "Rare disease Day" will take place on February 28, from 8: 30 am to 17:00 at the NIH Clinical Center (building 10), Masur Auditorium in Bethesda, MD. The event will also be broadcast online for those who are not able to attend in person.
In collaboration with the NIH Clinical Center, the event is presented by the National Centre for the Advancement of Science Translational '(NCATS) Office rare diseases research. It will feature several speakers, including Congressman Leonard Lance (NJ-07), Co-Chair of the Caucus of rare diseases; Director Francis S. Collins NIH, M.D., Ph.D; NCATS Director Christopher P. Audstin, M.D. and NIH Clinical Center Director John I. Gallin, MD
mesothelioma as a rare disease
About 3,000 Americans are diagnosed with mesothelioma, a rare disease caused by exposure to asbestos, every year. This rare form of lung cancer most often occurs in the thin membrane that lines the lungs, chest and abdomen. The disease attacks the membranes (mesothelium) that surround and protect vital organs. Mesothelioma cancer cells are known to spread rapidly and therefore the disease is often fatal.
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